Spontaneous Coronary Artery Dissection

I am still here for now

July 15, 2013

Last summer, at age 40 on June 30, 2012 I had a heart attack. I was misdiagnosed as a blood clot and given a stent and sent home on beta blockers, a blood thinner, and statins even though my cholesterol was 135 and my LDL was 66.

I stopped taking the Statins and eventually the beta blockers due to bad side effects. I continued my blood thinner and aspirin religiously.

This year on June 1, 2013, I was swimming with family. I began laughing really hard at a photo someone had taken when my coronary artery Spontaneously dissected in two places and a third rupture was discovered under the old stent in a different artery. I was given three more stents. I am 41 years old. I am a mom with four kids and the youngest is only 8.

My cholesterol is now 121 and my LDL is 57.  It was discovered that I carry a rare gene that made my blood thinner totally ineffective. I am currently taking a different blood thinner, two beta blockers, and aspirin. I am currently in heart failure from the damage.

My aunt had this 17 years ago and had her whole coronary artery replaced with a artery from her leg. She almost died but is doing well now in her late 50’s. She also had a cholesterol in the 120’s.

I am curious as to why we have such low cholesterol. Maybe if we had more in our arteries they wouldn’t roll up on us. We are missing something here. My Aunt was not over weight but I am and I would like to hear more about what we are missing and why our cholesterol levels are so low.